In 2017, based on anecdotal evidence that patients and families might have an important role to play detecting and escalating deterioration, we set out to better understand this.
We co-designed a patient wellness questionnaire with patients and staff and tested the extent to which this score was able to predict patient deterioration (Albutt et al, 2017-2022). We found that patients are in a unique position to detect deterioration but they do not always speak up and, when they do, may be ignored.
We went on to evaluate the use of our invention- patient wellness questionnaire in paediatrics and gathered further data to evaluate the predictive utility of the measure (Albutt et al., 2022) In 2023, the NHSE Worry and Concern Collaborative was established, testing and adapting these ideas. We supported this collaborative, offering guidance throughout the programme.
Here we provide guidance on how to implement this as part of Martha’s rule.