Developing and evaluating a patient-led, electronic incident reporting scheme for renal patients

September 2011– December 2014

Project Lead: Gerry Armitage (

Patients can be an important source of knowledge in reducing avoidable harm and improving care. However, we rarely have the means to share this information and may feel uncertain in doing so. Patients with renal (kidney) failure regularly require complex care in a range of environments but little is known about giving them the option to report on quality and safety and whether this is beneficial. Renal patient view (RPV) is a web-based electronic patient record that gives information to patients with kidney disease about their diagnosis, treatment, and latest blood tests – accessible from any networked computer. This study will further develop RPV through the embedding of a patient-led reporting scheme, to identify factors affecting quality and safety in renal services.

Research Question to be addressed
Can an electronic, patient-led reporting scheme increase the information available to improve the quality and safety of healthcare?

Methods of investigation
Agree objectives for a Renal Patient View (RPV) based reporting scheme and identify common contributory factors that impact upon quality and safety and consider how these are best reported using patient and staff focus groups. Ratify all of these using a joint services panel (including patients), and patient-led steering group

Adapt existing RPV technology and clinical governance processes in the study settings to accommodate a patient-initiated reporting scheme, pilot the scheme and collect a range of qualitative data from patients and staff to assess utilisation, and corroborate the patient report data with existing forms of quality/safety data

Following analysis of pilot data, implement the scheme across the study settings and survey patients and staff on the implementation process, acceptability, feasibility, and sustainability. We will also examine patient experience as a function of the scheme together and report on a concurrent cost analysis.

Funding sources
NIHR Research for Patient Benefit